"It just seems outside my health": How Patients with Chronic Conditions Perceive Communication Boundaries with Providers


Journal article


Catherine Y. Lim, Andrew B. L. Berry, Tad Hirsch, A. Hartzler, E. Wagner, E. Ludman, J. Ralston
Conference on Designing Interactive Systems, 2016

Semantic Scholar DBLP DOI PubMed
Cite

Cite

APA   Click to copy
Lim, C. Y., Berry, A. B. L., Hirsch, T., Hartzler, A., Wagner, E., Ludman, E., & Ralston, J. (2016). "It just seems outside my health": How Patients with Chronic Conditions Perceive Communication Boundaries with Providers. Conference on Designing Interactive Systems.


Chicago/Turabian   Click to copy
Lim, Catherine Y., Andrew B. L. Berry, Tad Hirsch, A. Hartzler, E. Wagner, E. Ludman, and J. Ralston. “&Quot;It Just Seems Outside My Health&Quot;: How Patients with Chronic Conditions Perceive Communication Boundaries with Providers.” Conference on Designing Interactive Systems (2016).


MLA   Click to copy
Lim, Catherine Y., et al. “&Quot;It Just Seems Outside My Health&Quot;: How Patients with Chronic Conditions Perceive Communication Boundaries with Providers.” Conference on Designing Interactive Systems, 2016.


BibTeX   Click to copy

@article{catherine2016a,
  title = {"It just seems outside my health": How Patients with Chronic Conditions Perceive Communication Boundaries with Providers},
  year = {2016},
  journal = {Conference on Designing Interactive Systems},
  author = {Lim, Catherine Y. and Berry, Andrew B. L. and Hirsch, Tad and Hartzler, A. and Wagner, E. and Ludman, E. and Ralston, J.}
}

Abstract

To improve care for the growing number of older adults with multiple chronic conditions, physicians and other healthcare providers need to better understand what is most important in the lives of these patients. In a qualitative study of home visits with patients and family caregivers, we found that patients withhold information from providers when communicating about what they deem important to their health and well-being. We examine the various motivations and factors that explain communication boundaries between patients and their healthcare providers. Patients' disclosures reflected perceptions of what was pertinent to share, assumptions about the consequences of sharing, and the influence of interpersonal relationships with providers. Our findings revealed limitations of existing approaches to support patient-provider communication and identified challenges for the design of systems that honor patient needs and preferences.


Share



Follow this website


You need to create an Owlstown account to follow this website.


Sign up

Already an Owlstown member?

Log in